Odpowiadając na Państwa prośby założyliśmy konto walutowe.
GBP: 05 1050 1559 1000 0097 1743 5912
EUR: 68 1050 1559 1000 0097 1743 7009
USD: 81 1050 1559 1000 0097 1743 7066
As a result of an unknown at the time to medicine mutation gene, Alexander was diagnosed with multiple different illnesses. Alexander was born 3rd of September 2018 he got 10 points Apgar scale. Nothing suggested that he was seriously ill. In the 6th week of his life suddenly he started to have moments of apnea in his sleep. After specific medical tests, it accorded that he has a rare illness and he got taken into metabolic diseases ward. The doctors did an EEG and the apnea were an attack of epileptic seizures. Initial diagnosis SCID - severe complex immunodeficiency. He was sanitarily isolated which means every day who had contact with him had to wear a coat, mask and gloves. We were going to go to Warsaw to have a medulla transplant but we had to wait in the cue in the meantime the state of Alexander turned worst. He had multiple times blood transfusion, he lost sucking reflex which means he had to be fed by a tube. After 2months of being in the hospital, other medical tests came in which excluded SCID. Another diagnosis this time correct - congenital disorders of pyrimidine metabolism - orotic acidosis with impaired immunity, leucopoenia and anaemia. We looked for help everywhere, unfortunately, doctors around the world were helpless, nowhere in the world has this type of incident has happened. Orotic acid attacked the intestines - He suffered a lot only relief was morphine. Fortunately, 3 antibiotics cured the intestines but the question is for how long? After the MRI scan, we learned that the orotic acid damaged the brain. Alexander re would never be able to walk or talk. He stopped reacting to the external stimulus he doesn't keep eye contact either. After a couple of weeks, Alexander has got pneumonia. Because of the breathlessness also lowered saturation caused him to go to intensive care. Since March Alexander is at home but unfortunately he is catching a lot of infections which mean he has to go back to the hospital a lot. The doctors have no clue how the disease is will continue to evolve in the future. We only know that he can pass away at any moment that's why we make the most of every day that we spend together. The money collected during the fundraiser will be spent on long term rehabilitation of Alexander and the money collected will also be spent on his medicine that he has to take even more to stop the suffering that he's going through also to stop the epileptic seizures. Other than that he will any day need a new special need car seat also a new pram. The cost of the pram and the car seat is what our family wage is in a couple of months. That's why we ask you to donate some money for us as we can't afford everything, every penny will mean a lot to us and Alexander for every help we get we are very thankful.-Alexander's family
Responding to your requests we made a special bank account for the different currency.
GBP – 05 1050 1559 1000 0097 1743 5912
USD – 81 1050 1559 1000 0097 1743 7066
Euro – 68 1050 1559 1000 0097 1743 7009