Our dear Sylwia is a six year old girl who lives in a care home facility for children with disabilities and who suffers from AHC, an ultra rare painful neurological disease characterised by repeated episodes of weakness and paralysis, difficulty with walking, poor coordination and balance, severe vision impairment, and developmental delay.

Sylwia requires regular speech therapy, physiotherapy, sensory integration therapy and learning support.

Hydrotherapy with a qualified professional is exceptionally beneficial for her because

in the water she doesn’t feel pain and she is capable of performing more muscle work.

In 2024/2025 we have paid for 40 hours of individual hydrotherapy for Sylwia and a 5 days long physiotherapy residential program, where she could attend speech therapy, hippotherapy, sensory integration activities, physiotherapy and more; all of those activities were highly beneficial to Sylwia’s cognitive and motor development.

We would like to thank everyone for your support!

Who is Sylwia and how did she become a part of our family?

Her life was not easy from the start; she was born at 30 weeks of gestation to a woman with significant substance abuse problems.

In her early childhood, prior to her stay in a care home, she did not have access to early developmental support and proper medical care, what caused further delay on many levels.

Two years ago we met Sylwia at a charity event and we immediately connected with that little girl, who is very friendly, chatty and cheerful, despite her painful condition and a tragical early life story.

A few months later we became Sylwia’s volunteer “aunt” and “uncle” and she became a part of our little family.

We take her on trips and days out every weekend; our 4 boys love her and get on very well with her.

Can you please help us to support Sylwia?