English version:

My name is Weronika, and I created this fundraiser for my 17-year-old brother, Rafał.

We first noticed problems with his eyesight when he was just a few years old. Our local ophthalmologist diagnosed him with retinitis pigmentosa, a degenerative retinal disease. Unfortunately, there is currently no cure or effective treatment for this condition.

After years of medical visits and genetic testing, results confirmed by the Medical University of Warsaw revealed that Rafał has Senior-Løken Syndrome, an extremely rare genetic disorder. This condition includes retinal degeneration, kidney cysts, intellectual disability, kidney failure, hypertension, heart enlargement, metabolic disorders, spinal dysfunctions, selective mutism, and many other complications that continue to emerge.

Due to his intellectual disability, Rafał couldn’t continue his education with his peers and has been attending a special needs school for years. Since childhood, he has struggled with night blindness, meaning he cannot see anything in the dark and needs assistance to move around. Imagine being a teenager, surrounded by others your age hanging out together, while you need to be led by your mother or sister just to walk safely.

As his vision deteriorated over time, so did his spirit. He stopped smiling, going outside, and engaging with others. For me and my mother, who raises him alone, it is heartbreaking to see. He used to love playing soccer, but now he can only enjoy it in video games.

Today, Rafał’s vision is limited to only his central line of sight—he can no longer see anything above, below, or to the sides.

Despite his challenges, one dream has always remained in his heart—visiting Japan. He constantly talks about sakura (cherry blossoms), Japanese traditions, and anime attractions like Naruto World Japan.

He is a passionate anime fan, especially of Dragon Ball, Naruto, and Demon Slayer, and he loves collecting figurines. His collection is growing every day!

💙 My biggest wish is that one day, doctors will find a cure for his disease and stop the progression of his vision loss. I constantly reach out to specialists and hospitals worldwide, but due to the extreme rarity of his genetic mutation, there are currently no planned clinical trials.

For now, the only thing I can do is fulfill his dream and take him on a trip to Japan while he can still see it. However, due to the high costs, I am turning to you for help. Every contribution, no matter how small, brings us closer to making his dream come true.

From the bottom of my heart, thank you to everyone who supports us. ❤️