Our dear Sylwia is a six year old girl who lives in a care home facility for children with disabilities and who suffers from AHC, an ultra rare painful neurological disease characterised by repeated episodes of weakness and paralysis, difficulty with walking, poor coordination and balance, severe vision impairment, and developmental delay.

Sylwia requires regular speech therapy, physiotherapy, sensory integration therapy and learning support.

Hydrotherapy with a qualified professional is exceptionally beneficial for her because

in the water she doesn’t feel pain and she is capable of performing more muscle work.

We are looking for support to pay for her weekly hydrotherapy session and for a weekly intensive physiotherapy residential program for her, which involves pysiothrapy, sensory integration activities, hydrotherapy and other activities to support Sylwia’s health and development.

In 2024/2025 we have paid for 40 hours of individual hydrotherapy and a week long physiotherapy residential program for Sylwia. We would like to thank everyone for your support.

Who is Sylwia and how did she become a part of our family?

Her life was not easy from the start; she was born at 30 weeks of gestation to a woman with significant substance abuse problems.

In her early childhood, prior to her stay in a care home, she did not have access to early developmental support and proper medical care, what caused further delay on many levels.

Last year we met Sylwia at a charity event and we immediately connected with that little girl, who is very friendly, chatty and cheerful, despite her painful condition and a tragical early life story.

A few months later we became Sylwia’s volunteer “aunt” and “uncle” and she became a part of our little family.

We take her on trips and days out every weekend; our 4 boys love her and get on very well with her.

Can you please help us to support her Sylwia?

We are a humble family, with 2 parents working full-time; two of

own children require extra medical care and educational support; our eldest is on the autism spectrum and requires regular psychotherapy and pharmacological treatment; the other one has learning difficulties and he can only thrive in a small private school with a complex educational support program.

However, I believe strongly that what defines us is not what we have, but what we share with others. And we want to support Sylwia the best way she can.

Will you help us?